Saturday, September 8, 2012

My Story by Heather Von St. James


Mesothelioma Cancer. My Story.

Heather and lovely daughter Lily

"You have cancer." Those are some of the most feared words in life. I was on the receiving end of those words at the prime of my life. I had given birth only 3 1/2 months before to my beautiful daughter, Lily. I was being informed that I had cancer. To be precise, I had malignant pleural mesothelioma -- a form of cancer normally caused by exposure to asbestos.

"Wait a minute. Isn't asbestos banned?" When I tell people I have cancer, these are usually the first words that pop out of their mouth. The second question is, "where and how were you exposed?" "No" is the answer to the first question. "Secondary exposure" is the answer to the second.

My father worked in construction, and came home with asbestos on his work clothes and in his car. The dust from his work harbored asbestos. That innocuous-looking white dust contained millions of toxic asbestos fibers invisible to the naked eye.

At the age of 36, when I was diagnosed, the Mayo clinic was only aware of one other person who developed mesothelioma at such a young age. The normal patient is usually older, male, and a tradesman. This includes men who work in heating, plumbing, etc.

Then wives of tradesmen began developing mesothelioma. Doing things like their husband’s laundry exposed them to asbestos. Shaking a dusty shirt before adding it to the washer sends anything on that shirt airborne. Also, teachers were exposed to asbestos at their workplace. These women represented the next generation of mesothelioma patients. I was only the tip of the iceberg.

Following me were growing numbers of children who were being diagnosed with mesothelioma. These were children who attended schools where asbestos was degrading. Children were also playing in insulation laden with asbestos in attics across the United States.

All across the country, children were jumping into their daddy's welcoming arms when he came home from work, unknowingly placing themselves in danger of a lifetime of illness at the hands of mesothelioma.

As time went by, I met more and more sufferers of mesothelioma who were my age or younger. Many were only just beginning their lives, with families of their own, new jobs and careers, only to have everything come to a sudden stop when they learned of their diagnosis.

I take some solace from the fact that advances in treatment for mesothelioma are helping more and more of them beat this cruel disease. This includes mesothelioma patients from all age groups.

So if you are like me and have learned that you have mesothelioma, have hope as I do. There is a community of people with mesothelioma that can support you as they have for me. Someone is there to support you, let you cry on their shoulder, and celebrate with you when you have victories.

Why am I sharing my story? To make people aware. If I can bring a little hope to dispel the fear of this disease, I have done my job.


- Heather

Know more about Heather and her cause by liking her Facebook page here

You've got mail!

In my previous post, I already told you about Heather. It began when I received a comment on my post Second Mothers. She said she had a question about my blog.


....and here's her response when I sent her an email. 

Heather says:

Hi Rory! Thanks for emailing me. The reason I have reached out to you is because of your blog! I am 43 and a mother to a quirky little 7 year old, Lily. She is my only child, and my whole world. When Lily was just 3 1/2 months old, I was diagnosed with Mesothelioma; a type of cancer that kills 90-95% of those who have it. As I’m sure you can imagine, the first thing that came to mind when I was diagnosed was my baby girl and how I wasn’t going to be able to watch her grow up.

After intense treatment and recovery, I’m still here 6 1/2 years later and cancer free! My journey with cancer was a terrifying one and I'd like to turn my pain into purpose and become someone that other people can look to for guidance, inspiration, and hope in situations like my own. I contacted you because I feel that your blog would be an excellent place for me to share my story. I realize that you may be thinking my story is not exactly a perfect fit for your blog audience, but I’m trying to raise awareness of this horrible little known cancer that is such a deadly killer (and sadly, 100% preventable) Would you accept a guest post from me about my journey as a new mother with cancer and the dangers of asbestos? I would love if you could at least include my link in your blogroll! Here is the link to my blog: www(dot)mesothelioma.com/blog/authors/heather

Either one would be such a great help to me. Let me know what you think!


First off, I'm so ecstatic that someone outside my usual readers -- namely my family (haha) -- reads my blog. I wrote this blog to share my thoughts to anyone open to read it. My purpose is just to put my thoughts out there since my husband usually gets disinterested with my stories when he's heard it the third time. Haha! My blog isn't one of those fashion or beauty blogs. Don't get me wrong, I'm fond of reading those but it's just not my personality. So I guess you can say this blog is pretty boring since it's mostly about my life, hence, imagine my surprise when I found out someone read it! Weeee!!! The beautiful thing about it is that I get her story and I feel for her. Please help me share her story and you might help prevent someone from having mesothelioma cancer. Watch out for her guest blog and please share. =)